RING14 USA OPEN !!!
VISIT THE LINK http://ring14usa.org
The Italian and American RING14 associations contribute to the same objectives in particular on scientific research and support to families, while still maintaining some autonomy projects related to their territory.
Over the next 2 months the Boards of the associations will work to unify the procedures, joint projects and goals, create an international scientific committee.
We both agree on the pursuit of the main goal that is: TO RAISE FUNDS AND DATA (GENETIC AND CLINICAL) TO FINANCE THE INTERNATIONAL SCIENTIFIC RESEARCH.
Earlier this year we will set up an international association that will manage the various RING14’s offices in the World (Italy and the USA up to now).
Families will be common to both organizations, could participate as now to all the projects proposed (holliday, congress, blood and data collection....) by both Italy and USA and will be contacted by both seats.
For now the BIO BANK and DATA BASE projects will continue to be managed by RING14 ITALY, funding scientific research projects will be done jointly creating INTERNATIONAL GRANTS to offer to the best researchers in the word with peer review control.
We apologize if at this early stage not all information will be clear and precise but it is important that all families know this wonderful news that does not divide us but strengthen us.
Many thanks to Terry, Yssa, Sylvia, Debbie, Sheila and Karen who are devoting their time to start this important project; our support is complete!
On the occasion of our tenth anniversary is truly beautiful to inaugurate the RING14 USA!